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May 19 - World IBD Day

May 19 is World Inflammatory Bowel Disease Day.  A day when IBD patients, their supporters and IBD organizations worldwide join hands to raise visibility and awareness of IBD, create more understanding of the impact these diseases have on lives and show the large numbers of people affected by Crohn’s disease and ulcerative colitis.

Globally, there are estimated to be well over five million people affected by Crohn’s disease and ulcerative colitis. In Canada, there are over 200,000 Canadians diagnosed with IBD; it affects more people than multiple sclerosis or HIV and is almost as prevalent as epilepsy and Type 1 diabetes.  9,000 more Canadians will be diagnosed this year. Despite that, IBD remains a closet disease, shrouded in silence and relatively unknown.

The Crohn’s and Colitis Foundation of Canada is part of a group of patient organizations representing 27 countries on four continents, that came together last year to organize the first World IBD. Patient groups from the United States, Canada, Australia, 23 European nations, and Brazil are working to create:


Add your voice - via tweets (@isupport IBD and #worldibdday) and Facebook status posts - to others from around the world and spread awareness and public understanding of Crohn’s disease and ulcerative colitis.
Become a fan of CCFC’s Facebook page and be a part of the conversation.

• A greater willingness among the public, the media and employers to learn about and talk about bowel diseases so they have a better understanding of the difficulties that patients and their families have to face.
• Better access to public toilet facilities and a willingness among businesses and organizations to make their toilet facilities available to people who have IBD.
• Fair access to good quality treatment and health services for IBD, including information and education to help patients and their families manage the impact of IBD on their daily life.
• Increased funding for research into the causes, better treatments and a cure for IBD, including research into the social and psychological impact of the disease on patients and their families.
• To be seen as an individual person who has to live with a long-term medical condition and not to be treated as someone whose life is wholly defined by having IBD.

Inflammatory Bowel Disease Fact Sheet.

   


How do you plan to raise awareness of Crohn’s and colitis for World IBD Day? Read CCFC’s Gutsy Generation’s blog and see how our youth with IBD are doing their bit. Follow their journey to the release of their book ‘Tales from the Throne: Living with Crohn’s disease and ulcerative colitis’ on May 19 – World IBD Day! Order the book online today! Part of the proceeds ($5 from each book) goes to research to find the cure for IBD.